The Choroideremia Foundation is leading the research underway to stop this eye disease
From the Drew Burt and Family,
My name’s Drew! I’m back and proudly running with Team CHM in the 2026 TCS New York City Marathon on Sunday, November 1st, to benefit the Choroideremia Research Foundation!
Choroideremia (CHM) is an x-linked inherited retinal disorder that causes progressive vision loss, ultimately leading to complete blindness. CHM is considered a rare disease because it only affects an estimated 1 in 50,000 individuals, including my grandfather, my great uncle, my cousin, and myself.
Since I was young, I’ve had to make habits of some things that others have not needed to. When I was growing up (and even to this day), it took my eyes much longer to adjust from light to darkness and as such, I’ve had to carry a flashlight around with me pretty much all my life. Though having flashlights on our phones nowadays has definitely helped, there is still the need to bring a flashlight out in dark and dimly lit areas when others of my age have not needed to.
But all this has in no way doused the flame of hope! The exciting news is that progress has been made and continues to be made through research. Though there are currently no treatment options or a cure for CHM, I know there is something good just over the horizon and that can be found through research and spreading awareness. Your support will help to fund research and education to help put an end to CHM!
Every donation—big or small—helps me reach my fundraising goal and directly impacts this important cause.
Thank you for standing by me in this effort. Your support means the world to me!
Drew’s parents, the locally famous, globetrotting Bare Knuckle Boxing Hall of Fame team, Judy and Scott are proud of Drew’s accomplishments and spirit in living with and advocating for others with CHM:
“We hope you can support him. He has already been training and is determined to finish the 26 mile race in less than 5 hours. Thank you to everyone who has supported his efforts. If you can help this year, thank you.”
He looking to exceed his $3000 fundraising goal so if you can help by using the link to his page (below) to make a pledge or just share this post, it would be very much appreciated.
Here’s the link to his page: https://secure.qgiv.com/event/2026tcsnycmarathon/account/2315903
Learn more about CHM, check the website: https://curechm.org/
